Frequently asked questions

Primary immune deficiency – is it AIDS?
No, the primary immune deficiencies are hereditary and not related to infectious diseases. Children suffering from primary immune deficiency are not dangerous to others, rather the others are a threat to children suffering from primary immune deficiency.

Is it possible to treat primary immune deficiency?
To date, there is the possibility of recovery from a primary immune deficiency with bone marrow transplantation. In today's world increases the number of forms of primary immune deficiencies, which can be cured with bone marrow transplantation. If a few years ago it was believed that it is sufficient to assign antibacterial and immunoglobulin replacement therapy, today doctors all over the world are trying as soon as possible to carry out bone marrow transplantation, to avoid various complications.

Is it scary that PID patients receive lifelong antibiotics and other antimicrobials, if it is considered that antibiotics suppress the immune system?
In primary immune deficiencies and other antibacterial antimicrobial therapy is prescribed to help the body, as the immune defense suffers firstly. In most cases, doctors who treat patients with primary immune deficiency diseases, do not face the complications of antibiotic therapy, which is so widely described in various media.

If a family has children with primary immune deficiency, does this mean that the family cannot have healthy children?
A chance of a sick child birth is 25% regardless of the version of the inheritance of the disease. Today we know the genes which mutations lead to the development of primary immune deficiencies. In most cases, doctors are able to help the family after conducting prenatal diagnosis at the early stages of pregnancy, and establishing whether the child suffers from a primary immune deficiency.

Are there any restrictions in social life for children with primary immune deficiency?
In most cases, these children have the same lifestyle as everyone else, exceptions are children with SCID (severe combined immune deficiency) who require isolation, and patients after BMT (bone marrow transplantation).

The author - Anna Yurasova, a physician-immunologist

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