Vakha Timirgiriev

1.5 years old, the Volgograd Region
Diagnosis: Primary immunodeficiency, severe combined immune deficiency (SCID). The boy underwent bone marrow transplantation recently.
Posaconazole, Valaciclovir, and Ursodeoxycholic acid are the medicines which are needed constantly.
The cost of a 1-month course of treatment is $1,900.

What has been done

19.09.2011 – baby food was purchased for the amount of 10,000 rubles.

20.09.2011 – the following items were purchased for the total amount of 5,031 rubles: Co-trimoxazole – 2 packs, Ursodeoxycholic acid – 2 packs, diapers “Active baby” – 3 packs, diapers “Active boy” – 3 packs, cereal “Infant”.

06.10.2011 – baby food “Humana” was purchased for the amount of 8,035 rubles.

25.10.2011 – a baby cot, a mattress, their delivery and bed assembly were purchased for the total amount of 6,300 rubles.

26.10.2011 – flight from Moscow, where the Russian Children’s Clinical Hospital is located, to the hometown of Volgograd was sponsored (the cost was 5,590 rubles).

02.11.2011 – Mycophenolate mofetil 250 mg x 2 packs (100 tabs) was purchased for the amount of 7,076.36 rubles.

21.11.2011 – baby food “Nutrilak” was purchased for the amount of 2,883 rubles.

21.11.2011 – baby food for the amount of 1,515.50 rubles was purchased.

28.11.2011 – the following medications were purchased for the amount of 108,920 rubles: Posaconazole – 2 packs, Pancreatin – 3 packs, Valaciclovir – 1 pack, Ursodeoxycholic acid – 3 packs, Ademetionine – 2 packs.

30.12.2011 – flight from Volgograd to Moscow, where the RCCH is located, was sponsored (the cost was 5,690 rubles).

27.01.2012 – the following items for the amount of 6,123 rubles were purchased: diapers, wet wipes, baby food

07.02.2012 – flight from Moscow, where the hospital is located, to the hometown of Volgograd was sponsored (the cost was 5,690 rubles).

24.02.2012 – baby food was purchased for the amount of 6,000 rubles.

24.02.2012 – Mycophenolate mofetil 250 mg x 1 pack (100 tabs) was purchased for the amount of 5,900 rubles.

05.03.2012 – laboratory tests were paid (the cost was 3,455 rubles).

04.05.2012 – Russian Club of Luxembourg donated 48,202 rubles for purchasing 1 vial of Posaconazole.

22.05.2012 – the following medications were purchased for the amount of 3,613 rubles: Ursodeoxycholic acid, Co-trimoxazole, Pancreatin, Valaciclovir.

12.03.2013 – the following medications were purchased for the amount of 5,139 rubles: Posaconazole, Valaciclovir, Ursodeoxycholic acid, Azithromycin.