Vladislav Tikhonov

11 years old, Krasnoarmeysk (the Moscow Region)
Diagnosis: Primary immunodeficiency. Wiskott-Aldrich syndrome.
How to help: Considering the poor prognosis of the disease, the age and condition of the patient, experts strongly advised that Vladislav should urgently undergo a bone marrow transplantation in a foreign clinic.
Vlad’s case drew attention of the Ministry of Health after the release of the story about him on NTV. On January 18, the boy’s mother received an official reply from the ministry, stating that the government will cover all expenses associated with the bone marrow transplantation performed in the University Hospital Freiburg (Germany). Signing a contract with the hospital and getting visas will take 1.5-2 months approximately. Right after that Vlad and his mother will leave for the transplantation.
The money collected for Vlad will be spent on the needs of other children suffering from immunodeficiency. If you wish to address your donation to a specific child, please let us know.

Story

11-year old Vlad has a fatal diagnosis - primary immunodeficiency, Wiskott-Aldrich syndrome. It affects only boys. Looking at Vlad, who seems a perfectly healthy child, sturdy and active, it’s frightening to hear the doctors, who give Vlad one or two years to live. According to existing global statistics, boys with Wiskott-Aldrich syndrome are lucky to live to 15. Doctors say that given the poor prognosis of the disease, the only effective treatment is an immediate bone marrow transplant. (Link to an excerpt from the case of Vlad)


- Vlad is the main man in my life - says Vladislav’s mother. –He takes care of me, is always one step away from me and does not let go - afraid that I may get lost in the hospital and he always gives me half of his dinner – worrying, perhaps, that I am hungry. I cannot imagine that I might lose him all of a sudden.

Vlad gives me his hand, offering strawberry cookies and a walk around the Department of Immunology of the new building of the FNKTS. The child shows the "games’ room", the hospital kitchen and the ward where his friend lived. He stops suddenly and says that he does not like it here that he wants to go home and that he fears the operation. "It's very painful” – Vlad says – “Just imagine, they will use a big needle on me. Although it may not happen. My mother said that the operation is expensive and she doesn’t have such money. I reassure her and say that the money will be found, and that there aren’t any needles I am afraid of. The child purses his lips, looks long at me and says, "Is it true that the money will be found"?


We go back with Vlad to the ward where his mother is waiting for us. The guy climbs on to his bed and with a serious face  starts biting his nails. Vlad's mother tries to tell her son off and complains that he no longer looks after himself.


- Doctors forbid him from doing any exercise - says Vladislav’s mom – but just give him a bike. He would ride it with his friends like crazy. Vlad does not talk to them about his illness as he does not want to be different from them”. The boy becomes embarrassed and says to his mom, that she should not worry as he has worked out that everything will be all OK. To not believe in his "OK" at this time would make any healthy person feel ashamed –so earnestly does he utter the word.  I ask Vlad what he will do when he gets better. Without hesitation, he answers that he "will wave at the sea." It turns out he has never seen the sea–as the doctors have never allowed it. And then he adds, "I'll go with Mom, as it’s my fault, too, that she has never been to the sea. And what is this "sea"? "

The boy will soon stop being helped by his regular injections of immunoglobulin, which still somehow maintain his health. The only way to save Vlad is an urgent, very urgent, bone marrow transplant in a foreign clinic, the cost of which is 258 000 Euros. This is that very same operation, of which Vlad was afraid due to those large needles and for which his mother has no money – because for the average person in this country that much money is not an option.

Vkontakte Vladislav has a girlfriend. He did not give her name, saying that he fears that we will tell her about his illness, and she will stop being his friend. So Vlad has already decided that he will recover, be sure to meet her and maybe even ask her to marry him. "Only at first - said Vlad – I should take mum to the sea - is the main thing for me right now."

 

SAVING 11- year old  VLADISLAV TIKHONOV IS 258,000 EURO.
If you decide to save Vladislav, each of your contributions will be gratefully received.
The Foundation website www.fondpodsolnuh.ru/help/ accepts credit card or e-cash donations, even from abroad.
All charitable donations  sent via SMS to the short number 3116 id (space) the amount of such id 300, from October 16, will be transferred to pay for Vladislav’s transplant.