Letter from Sergey’s mother:
"My son, Sergei Boriskin, was born January 27, 2010 at just 35-36 weeks (8 months). Two hours after his birth, he could not breathe and he was transferred to the intensive care unit at St. Vladimir’s hospital and put on a ventilator. He stayed there for 40 days after which he was transferred to the pediatric ward. We all stayed there for another 4 months. During this time, my son underwent an operation to remove his appendix and had three blood transfusions and that’s just the tip of the iceberg of the things he endured during process of diagnosis.
The first year of the baby’s life was spent in hospital. Sergei was finally diagnosed with CINCA (Mukle-Wells syndrome) at 2 years 1 month. By that time we had been in every hospital in Moscow.
He is now 2 years and 9 months. He still cannot sit up, crawl, chew, let alone walk.
We started the treatment for the primary diagnosis three months ago. In fact the treatment consists of every morning starting with an injection of the drug "Anakinra", which is not certified in Russia. This lifesaving cannot be avoided. Analysis shows that we are gradually returning to normal and that we need to undergo intensive rehabilitation.
I'd really like my son to do more than just exist, but to live and there is a good chance that this might happen. My task, as any mother of a disabled child, is to give my child love, care, hope and a belief that things will get better. In addition to the restorative massages, time spent in the swimming pool, sessions with a speech therapist, physiotherapy and exercise therapy, we need Voight therapy massage (initially 10 sessions). The cost for one course is 45,000 rubles. How often this has to occur will only be known after the first course. We’ll need to see how Sergey responds to this therapy. I ask you to help us organize the collection of funds for this therapy.
Thank you in advance!
Boriskin family. "