Elina Faizova

9 years old, Chelyabinsk
Diagnosis: Juvenile rheumatoid arthritis.
Abatacept was purchased for Elina at the cost of 37,700 rubles.


Elina’s Story

Elina is 8 years old. Six years ago she was diagnosed with juvenile rheumatoid arthritis (Still’s disease). It is an autoimmune disease that occurs in people after their immune system malfunctions and turns against their own bodies by treating their own joints and organs as intruders, therefore aiming to destroy them. The causes for the malfunctioning are still not known to the science.

Elina’s disease started in 2005 when she was just 18 months old. One day the girl started limping on her right leg even though she had no visible injuries. Elina’s parents took her to an emergency room where Elina was prescribed a topical ointment. Her parents were assured that their daughter was all right, and the family was sent home. That day marked the beginning of the family’s constant trips to see medical professionals: “We stayed in so many hospitals; we heard so many diagnoses – from banal platypodia to cerebral palsy. Our girl had pain when walking; she would run a fever and lose appetite; she quickly lost weight. Only after the joints on both of her arms and legs became deformed she finally was diagnosed correctly, and we started a treatment with immunosuppressants.”

Over 4 years went by since the first symptoms of the disease appeared before Elina was finally diagnosed correctly. Traditional medication gradually stopped being effective, so doctors in Moscow prescribed the girl to be treated with Orencia. The prescribed dosage is 250 mg, one package a month is needed until July 2013.

Right after Elina started the treatment, her fever ceased and she felt much better. Orencia also has anti-inflammatory properties: it blocks inflammation-inducing cells and therefore helps an individual feel better and lead an overall healthy lifestyle.

Elina is a very smart and diligent girl; she gets straight A’s at school despite her sickness. When she grows up, she hopes to become a veterinarian and treat animals.