Semyon Kulakov

16 years old, the Irkutsk Region
Diagnosis: Primary immunodeficiency, agammaglobulinemia, rheumatoid arthritis.
A wheelchair at the approximate price of 14,549 rubles was purchased for Semyon.


Semyon's story

Semyon Kulakov was born in Cheremkhovo, Irkutsk Region. He is sixteen now. He didn’t have any notable health complications until he turned four. At four, however, serious problems with his health begSan.

In 1999, Semyon’s younger sister Dasha was born. At 3 months, she underwent poliomyelitis vaccination. After being around his sister, Semyon got sick. He was diagnosed with poliomyelitis generated by contact with a vaccinated person. His polio had a stronger impact on his lower limbs.

This marked the beginning of Semyon’s troubles. All common children’s diseases affected him very easily. Doctors pitched him the idea of strengthening his immunity with fresh air, vitamins, and goat milk.

In 2006, another health complication was added to the already existing ones. Semyon’s ankle joint started giving him great pain. He was submitted to a regional hospital where a surgery was performed. The following day, all of the joints in his body became inflamed. It was only at that point that Semyon was offered to be treated at the Russian Children’s Clinical Hospital (RCCH) in Moscow, where he was finally diagnosed correctly with primary immunodeficiency – agammaglobulinemia, and a joint-affecting form of rheumatoid arthritis.

Semyon is being homeschooled. He loves to cook. He likes experimenting with his own recipes and dreams of becoming a chef. He is very persistent in everything he does, and always achieves the goals he sets for himself. Semyon is very kind and sympathetic. The boy’s father is a driver, and his mother works in a government-funded organization. They also have to support Semyon’s sister Dasha, a 6th-grader.

Because of the severity of Semyon’s disease, the boy has to get around in a wheelchair. He recently underwent a surgery that will hopefully help him to start walking on his own eventually. Before that happens, he’ll have to go through a long recovery period.

After Semyon’s most recent flight back from his hospitalization in Moscow, his old wheelchair broke. Semyon’s family is of very modest means, so they can’t afford to buy another wheelchair. Unfortunately, it’s the only way for Semyon to get around right now…