Alexey Grishin is 12 years old. He needs life-saving drugs constantly.
From the very moment of his birth, Alexey has been falling ill frequently. Before he was 2, the boy was taken to hospitals 5 times (each time with a different infection), had 2 operations and suffered a left-sided pneumonia.
In the RCCH he was diagnosed with primary immunodeficiency (chronic granulomatous disease). Since then his life has been limited to his house and the hospital. Alexey is a cheerful child, loving life so much, that people around him seem to get filled with light. Realizing his serious condition he continues to fight. He courageously endures all medical procedures and operations. Over the last year he survived two splenic embolizations, which are very painful. As a result of the procedure, part of the spleen dies off. This is needed in order not to let the spleen destroy healthy cells. But unfortunately the embolizations did not help. Blood tests were getting worse. Consequently, a decision to remove the spleen was made. Alexey endured this surgery, too. He never cries and always says that everything will be fine.
Blood test improved after the operation, but terrible news came. Alexey was found to have an invasive aspergillosis (a fungal infection in the lungs). It is a life threatening disease, often leading to death. In combination with CGD, the disease gets especially dangerous. About 70% of all invasive aspergillosis deaths occur to the patients with CGD.
Amphotericin B is the drug that can prevent the disease from progressing, but it is very expensive (a 1-month supply of 40 vials x 50 mg costs 354,800 rubles).
Alexey is a very kind-hearted boy who believes in responsive and caring people that will help him pull through.