Until he turned 1, Maksim was developing even faster than peers. But later, health problems, including lurch and inability to sit, started. The boy was followed up in a local medical center in Arkhangelsk, but its physicians were unable to make an accurate diagnosis.
Within 1.5 years Maksim had 3 antritises and 4 pneumonias. His pediatrician forwarded the boy to an immunologist, who in 2013 made a diagnosis of Louis–Bar syndrome, which was later confirmed by the tests made in the RCCH.
Maksim was admitted to the RCCH in a serious condition on April 1, 2013 (a thrombosis of peripheral limbs broke out, complicated with a necrosis). Now the boy needs constant blood thinning to prevent the formation of new blood clots. For this purpose, 2 injections of Enoxaparin need to be done daily.
At the end of the week the kid will be discharged home, and while the issue with the government to provide the drug will be settled, it is necessary to buy a 1-month supply of the life-saving medication. Breaks in taking it are inadmissible.